Life and Lyme

Muddling Through Life with Lyme Disease

Tag: lyme disease

  • denial

    I\’ve never particularly been one for self-denial. Not that kind! Jeez, people. The kind where I don\’t \’allow\’ myself to do things I might enjoy because I\’m chronically ill. There are several reasons for this, but the main one is that over time, I have come to feel guilty for still being sick and have…

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  • Even keel

    I love the etymology of words and phrases. Yesterday, I wanted to say \”on an even keel\” in Spanish and struggled to explain what that meant. Two of the students are men in their twenties, and the instructor is a Puerto Rican woman in her twenties. Idioms are lost on younger people now (not all,…

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  • pot

    Since I have been on the subject of herbs, I might as well talk about my favorite herb. I have a long and complicated relationship with marijuana. Sometimes she\’s my bitch, and sometimes I am hers. Mostly it\’s a solid, happy union that makes us both happy.  Since legalization, I\’ve been able to choose what…

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  • Herbs

    People are often amazed by how many herbs I use for Lyme treatment. Our medical community has done a fine job of discrediting the use of herbs to treat many illnesses effectively. I think people imagine me wandering down the aisles of Whole Foods or Natural Grocers, picking up things that will help me with…

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  • guardian

    I watch over myself like the guardian of a high-powered executive. Although the pay sucks and I\’m anything but high-powered, I like to think I\’m a pretty good gatekeeper. So I hoard my energy, get my rest, take the various drugs/herbs/supplements that are working at the moment, take care of the everyday tasks to be…

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  • resettling

    I railroaded my dad into letting me move in with him this past September. It seemed like a good time with COVID and lockdowns and my continued journey with chronic Lyme. The original plan was to sell my house, move in with dad for a while, and later on, move to Costa Rica. Then came…

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  • One of those days

    There is truth to the adage Johnny Depp quoted in \”Pirates of the Caribbean\”: \”Crazy people don\’t know they\’re crazy\”. Whenever Lyme is flaring up, I am always slow to realize it\’s happening. The first signs are the same. Aches and pains, headaches, a heavy fatigue, and a brain that skips and skitters. Obviously I…

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  • sequestered

    There\’s a difference between quarantined and sequestered. Quarantined means YOU have the illness. Sequestered means I DON\’T WANT THE ILLNESS. I\’m back to where I was three years ago: stuck at home being sick. Bartonella, one of my co-infections, is the bane of my existence. Borrelia burdorferi and babesia have been contained (not eradicated, contained). Not Bartonella. It continues to rage…

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  • mental

    I\’ve been thinking about suicide a lot lately. Wait, don\’t panic! Not in a real way, but in a Lyme way. There is a difference, and it is significant. Psychiatric problems from Lyme are well-documented and common. After all, there are, quite literally, bugs in your brain, wreaking havoc. So when I say I think about suicide,…

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  • RomComs

    I can always tell when I\’m feeling better. First sign is a manic frenzy to get my life \”back on track\”. I play catch-up and start to think about the future. That instantly brings on depression, anxiety and panic, so I try to balance it out by watching romcoms. I like romantic comedies. A LOT.…

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  • Stalled

    I been holed up lately, because there\’s not much to say right now. Yes, I\’m still sick. No, I don\’t know if I\’ll ever be completely well. No, there\’s really no clear path or prognosis for me. Yes, it sucks. The uncertainty and grind of being sick for so long has started to wear me…

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  • Fears

    I used to think I wasn\’t a fearful person. Armed with statistics and a healthy lifestyle, illness and accidents were part of a lottery I thought I had little chance of winning. Then I was bitten by a tick. Now I see that I had plenty of fears, I just didn\’t admit to them. Except…

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  • priorities

    I am bouncing back from a particularly shitty relapse. I\’m feeling overwhelmed and hopeless, like I can\’t manage my own life anymore. The worst part of this relapse and aftermath has been mental. If you haven\’t heard from me in a while, you are not alone. I prefer to be wiggy in private. To add…

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  • toil

    It has been almost six weeks since I began to seriously participate in my own life again. This sounds rather pathetic, but after three years of unrelenting illness, this is a major accomplishment. The problem is, what is my life? There is nothing, outside of staying in Denver, Katie, and my Dad, that is the…

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  • flabby

    My mind, body and spirit have grown flabby from Lyme. I had good news from my doctor this week. I am, metaphorically, sprinting down the backstretch. Only I\’m not sprinting, I\’m lackadaisically strolling, the one pace Lyme allowed. This is supposed to be good news, and it is. I haven\’t figured out what it means…

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