Tag: coping
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heat
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by
Read more: heatI didn’t want to get up at 4:45 am this morning, but I did. The heat is defeating me once again. This is my third summer in Tucson and I get a Lyme relapse for weeks every time. I’m never quite well until it cools off, usually in late September or early October (and by…
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neurospicy
Read more: neurospicyI love the word “neurospicy.” It’s a lot less heavy than the term neurodivergent. An estimated 15-20% of Americans are considered neurodivergent, but what exactly is neurodivergent, anyway? A lot of different conditions fall under the umbrella of neurodivergent: autism spectrum, ADHD, dyscaculia, dyslexic, dyspraxia, Tourette syndrome, mental health, and, this one is interesting, “acquired…
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delusions
Read more: delusionsCaretaking is a tricky business. One minute it’s simply doing the housework, making sure things run smoothly, cooking, and going to a few doctor appointments. This scenario doesn’t mean that the caretaker is on easy street, but it does mean that you can be in a state of denial about the future. Last month, I…
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decompression
Read more: decompressionI think I may be decompressing (or falling apart) after an incredibly busy and stressful summer. Now that I am healthy more than I am sick, I chose to cash in on my home and simplify my life. Sounds good, right? Well, I know moving. I have moved forty times in my life (this was…
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pot
Read more: potSince I have been on the subject of herbs, I might as well talk about my favorite herb. I have a long and complicated relationship with marijuana. Sometimes she’s my bitch, and sometimes I am hers. Mostly it’s a solid, happy union that makes us both happy. Since legalization, I’ve been able to choose what…
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resettling
Read more: resettlingI railroaded my dad into letting me move in with him this past September. It seemed like a good time with COVID and lockdowns and my continued journey with chronic Lyme. The original plan was to sell my house, move in with dad for a while, and later on, move to Costa Rica. Then came…
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sequestered
Read more: sequesteredThere’s a difference between quarantined and sequestered. Quarantined means YOU have the illness. Sequestered means I DON’T WANT THE ILLNESS. I’m back to where I was three years ago: stuck at home being sick. Bartonella, one of my co-infections, is the bane of my existence. Borrelia burgdorferi and babesia have been contained (not eradicated, contained.) Not Bartonella. It…
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mental
Read more: mentalI’ve been thinking about suicide a lot lately. Wait, don’t panic! Not in a real way, but in a Lyme way. There is a difference, and it is significant. Psychiatric problems from Lyme are well-documented and common. After all, there are, quite literally, bugs in your brain, wreaking havoc. So when I say I think about…
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Stalled
Read more: StalledI’ve been holed up lately, because there’s not much to say right now. Yes, I’m still sick. No, I don’t know if I’ll ever be completely well. No, there’s really no clear path or prognosis for me. Yes, it sucks. The uncertainty and grind of being sick for so long has started to wear me…
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lapses
Read more: lapsesNow that I am attempting to resume my interrupted life, I’m discovering a few things. Earlier in my life, I had many surgeries, mostly for having a reproductive system, but also cryosurgery to repair a torn retina and ACL replacement. After each of those surgeries, there was a period of time that I simply lost.…
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