Life and Lyme

Muddling Through Life with Lyme Disease

Category: Chronic illness

  • guardian

    I watch over myself like the guardian of a high-powered executive. Although the pay sucks and I’m anything but high-powered, I like to think I’m a pretty good gatekeeper. So I hoard my energy, get my rest, take the various drugs/herbs/supplements that are working at the moment, take care of the everyday tasks to be…

    Read more: guardian
  • dreaming

    I have had some vivid, amazing dreams lately. Animals visit me regularly in these dreams. So far, I’ve had dreams with turtles, snakes, elephants, bees, cats, frogs, and dogs. At first, I just bored Katie with retellings of these dreams. Her advice was to look up the meaning of the dreams. Well, I did. Let…

    Read more: dreaming
  • curmudgeon

    Is there a word for female curmudgeon? The formal definition is a “bad-tempered person, especially an old one” and is unisex. I’m not one yet, but I’ve been flirting with the possibilities of allowing myself the luxury. This would require energy, maybe more energy than the daily decision to find something good about the day.…

    Read more: curmudgeon
  • resettling

    resettling

    I railroaded my dad into letting me move in with him this past September. It seemed like a good time with COVID and lockdowns and my continued journey with chronic Lyme. The original plan was to sell my house, move in with dad for a while, and later on, move to Costa Rica. Then came…

    Read more: resettling
  • One of those days

    One of those days

    There is truth to the adage Johnny Depp quoted in “Pirates of the Caribbean”: “Crazy people don’t know they’re crazy”. Whenever Lyme is flaring up, I am always slow to realize it’s happening. The first signs are the same. Aches and pains, headaches, a heavy fatigue, and a brain that skips and skitters. Obviously I…

    Read more: One of those days
  • mental

    I’ve been thinking about suicide a lot lately. Wait, don’t panic! Not in a real way, but in a Lyme way. There is a difference, and it is significant. Psychiatric problems from Lyme are well-documented and common. After all, there are, quite literally, bugs in your brain, wreaking havoc. So when I say I think about…

    Read more: mental
  • Stalled

    I’ve been holed up lately, because there’s not much to say right now. Yes, I’m still sick. No, I don’t know if I’ll ever be completely well. No, there’s really no clear path or prognosis for me. Yes, it sucks. The uncertainty and grind of being sick for so long has started to wear me…

    Read more: Stalled
  • DNA

    I have two family trees. All adoptees do. The first is the family whose name I share, who I grew up with, my family. The other tree is newer, yet with older roots. It is my DNA tree. I had done a DNA test over fifteen years ago, but the parameters were much broader back then. This…

    Read more: DNA
  • flabby

    My mind, body and spirit have grown flabby from Lyme. I had good news from my doctor this week. I am, metaphorically, sprinting down the backstretch. Only I\’m not sprinting, I\’m lackadaisically strolling, the one pace Lyme allowed. This is supposed to be good news, and it is. I haven\’t figured out what it means…

    Read more: flabby
  • comfort

    This blog was originally about losing my mind and being sad when I got well enough to realize I lost my mind for a good long while. There is little doubt (at least to me) that my brain is returning.  I kept veering off the subject of crazy, though. and into grief. I had no…

    Read more: comfort
  • vacation

    I like vacations. I especially like unexpected vacations, like the one I was just on. I say \”unexpected\”, but I mean \”forgot about\”. This happens to me more than you\’d think. To many people, being sick IS vacation. There is the luxury of staying home and taking care of yourself. I don\’t know what this says…

    Read more: vacation
  • dad

    Yes, my dad is alive and kicking. I want to take the opportunity to embarrass him while I can. It\’s not often we get our own personal heroes, but I have one, a fact that has become even more emphatically clear during my struggle with Lyme. Dad and I are extraordinarily close, our relationship uncomplicated,…

    Read more: dad
  • retired?

    What\’s the difference between being retired and being useless? Staying busy or taking up space? Is there a magical moment where one moves from one column to the next? I\’ve been pondering these questions as I cobble together ways to feel useful and productive with the erratic uncertainty of Lyme. I am terrified of being…

    Read more: retired?
  • doublechecking

    I like to google the side effects of the drugs I take. I used to do this several times a day, mainly because I could never remember what they were from hour to hour. I do it a lot less now. A month ago, some not so good symptoms crept back (a whole other google…

    Read more: doublechecking
  • liar

    I was going to write a paean to my Dad on my blog this week, being Father\’s Day and all, but my dad really, really hates Father\’s Day. Instead, I realized that I lie to myself about Lyme now. Yes. It\’s true. You can lie to yourself about anything. Think about it. I\’ve decided I should…

    Read more: liar
error

Enjoy this blog? Please spread the word :)