Life and Lyme

Muddling Through Life with Lyme Disease

Category: Lyme Disease

  • resettling

    resettling

    I railroaded my dad into letting me move in with him this past September. It seemed like a good time with COVID and lockdowns and my continued journey with chronic Lyme. The original plan was to sell my house, move in with dad for a while, and later on, move to Costa Rica. Then came…

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  • One of those days

    One of those days

    There is truth to the adage Johnny Depp quoted in “Pirates of the Caribbean”: “Crazy people don’t know they’re crazy”. Whenever Lyme is flaring up, I am always slow to realize it’s happening. The first signs are the same. Aches and pains, headaches, a heavy fatigue, and a brain that skips and skitters. Obviously I…

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  • mental

    I’ve been thinking about suicide a lot lately. Wait, don’t panic! Not in a real way, but in a Lyme way. There is a difference, and it is significant. Psychiatric problems from Lyme are well-documented and common. After all, there are, quite literally, bugs in your brain, wreaking havoc. So when I say I think about…

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  • Stalled

    I’ve been holed up lately, because there’s not much to say right now. Yes, I’m still sick. No, I don’t know if I’ll ever be completely well. No, there’s really no clear path or prognosis for me. Yes, it sucks. The uncertainty and grind of being sick for so long has started to wear me…

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  • DNA

    I have two family trees. All adoptees do. The first is the family whose name I share, who I grew up with, my family. The other tree is newer, yet with older roots. It is my DNA tree. I had done a DNA test over fifteen years ago, but the parameters were much broader back then. This…

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  • flabby

    My mind, body and spirit have grown flabby from Lyme. I had good news from my doctor this week. I am, metaphorically, sprinting down the backstretch. Only I\’m not sprinting, I\’m lackadaisically strolling, the one pace Lyme allowed. This is supposed to be good news, and it is. I haven\’t figured out what it means…

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  • comfort

    This blog was originally about losing my mind and being sad when I got well enough to realize I lost my mind for a good long while. There is little doubt (at least to me) that my brain is returning.  I kept veering off the subject of crazy, though. and into grief. I had no…

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  • vacation

    I like vacations. I especially like unexpected vacations, like the one I was just on. I say \”unexpected\”, but I mean \”forgot about\”. This happens to me more than you\’d think. To many people, being sick IS vacation. There is the luxury of staying home and taking care of yourself. I don\’t know what this says…

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  • dad

    Yes, my dad is alive and kicking. I want to take the opportunity to embarrass him while I can. It\’s not often we get our own personal heroes, but I have one, a fact that has become even more emphatically clear during my struggle with Lyme. Dad and I are extraordinarily close, our relationship uncomplicated,…

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  • retired?

    What\’s the difference between being retired and being useless? Staying busy or taking up space? Is there a magical moment where one moves from one column to the next? I\’ve been pondering these questions as I cobble together ways to feel useful and productive with the erratic uncertainty of Lyme. I am terrified of being…

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  • doublechecking

    I like to google the side effects of the drugs I take. I used to do this several times a day, mainly because I could never remember what they were from hour to hour. I do it a lot less now. A month ago, some not so good symptoms crept back (a whole other google…

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  • liar

    I was going to write a paean to my Dad on my blog this week, being Father\’s Day and all, but my dad really, really hates Father\’s Day. Instead, I realized that I lie to myself about Lyme now. Yes. It\’s true. You can lie to yourself about anything. Think about it. I\’ve decided I should…

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  • curses

    I curse. A lot. Recent studies indicate cursers are smarter and more honest. Yes! Let\’s go with that. I can\’t remember the first time I heard someone curse, or the first time I cursed. I do remember cursing with my friends on the bus, the words spitting out of my mouth. Curse words are often…

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  • acceptance?

    I fucking hate babesia. Babesia is one of my co-infections, a malaria-like parasite also called a \”piroplasm\”, whatever the fuck that is. It clouds my mind and saps my energy. I get angry and depressed for no reason. My eyes go wonky. All the normal boring crap, too, like fatigue and muscle aches and joint pain. For once,…

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  • lovesick

    Infect me. Really. Four years after my divorce, I am ready. Or am I? And why did I choose the word lovesick? Why not simply love? I\’m not sure, I\’m only certain I want the heart-pounding, stomach-swooping sickness that falling in love brings. I\’m ignoring the other side of lovesick. The anxiety and uncertainty, the…

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