Category: Chronic illness
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heat
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Read more: heatI didn’t want to get up at 4:45 am this morning, but I did. The heat is defeating me once again. This is my third summer in Tucson and I get a Lyme relapse for weeks every time. I’m never quite well until it cools off, usually in late September or early October (and by…
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cook
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Read more: cookI am a good home cook. There is a vast difference between home cooks and professional cooks. They have a sophistication with spices and ingredients that I don’t have. Chefs would laugh at my chopping and plating skills, and my dining room could be out on the porch or in the living room, but I…
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spiders
Read more: spidersIt’s spider season in Tucson. I used to be afraid of spiders. Oh, I don’t like being surprised by a big spider, and it’s a big hell no from me on spiders in Costa Rica or Australia. I mean, look at this picture of two spiders from Costa Rica. No thank you! I think everybody…
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neurospicy
Read more: neurospicyI love the word “neurospicy.” It’s a lot less heavy than the term neurodivergent. An estimated 15-20% of Americans are considered neurodivergent, but what exactly is neurodivergent, anyway? A lot of different conditions fall under the umbrella of neurodivergent: autism spectrum, ADHD, dyscaculia, dyslexic, dyspraxia, Tourette syndrome, mental health, and, this one is interesting, “acquired…
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oatmeal
Read more: oatmealAfter a few heavy blogs, I decided to wade into a controversial topic: Oatmeal. I am team oatmeal. I love oatmeal. Oatmeal pancakes, oatmeal muffins. A bowl of steel cut oats cooked in an InstaPot. Oatmeal cookies. Oatmeal with fried eggs, chard, and onion. Oatmeal with leftover meat and veg. Fried leftover oatmeal with maple…
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delusions
Read more: delusionsCaretaking is a tricky business. One minute it’s simply doing the housework, making sure things run smoothly, cooking, and going to a few doctor appointments. This scenario doesn’t mean that the caretaker is on easy street, but it does mean that you can be in a state of denial about the future. Last month, I…
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diy
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Read more: diyI am absurdly proud of my new website. In a fit of misplaced optimism six weeks, or maybe it was two months ago, I decided to switch from InMotion hosting to Bluehost and update my website. Let me assure you my qualifications to do these things are minimal. I told myself, “hey, it’s not rocket…
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my house
Read more: my houseOh yeah, I don’t really have a house that is mine right now. This fact was made clear when I had some friends over last week. This is my Dad’s house. Of course it’s familiar, some of the things I have known virtually my entire life. The pictures and furnishing are intimately familiar to me,…
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prescience
Read more: prescienceTwo years ago I sold my big house, bought a smaller townhome with Katie, and left for Tucson to live with Dad. I did it with somewhat vague intentions, influenced by COVID, my own health, and my dad’s health. I spent zero time wondering if I was doing the “right thing” logically, and trusted my…
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holidays
Read more: holidaysJuly 4th is tomorrow. I asked Dad if he wanted to do anything and he gave me the look that said not only “no,” but “HELL no.” I am okay with that. In fact, since Lyme, I don’t celebrate most holidays very much, certainly not like I used to. My theory is we celebrate most…
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baby steps
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Read more: baby stepsIn the past 7 years I have made many attempts to get “back to life.” “Life” was defined as a regular job, keeping up the house, paying the bills, an active social life, and a return to health. Each effort lasted until a flare-up, and then I couldn’t juggle all of those things. After most…
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time warp
Read more: time warpAnybody who has known me for any length of time knows that I am the world’s worst at dates and times. This is a neural defect I can’t blame on Lyme. It’s also not ADHD, nor is it carelessness. I could blame it on falling out of a tree at the age of seven. My…
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balancing act
Read more: balancing actI got my booster shot yesterday. I’d forgotten how much each vaccine stirs up my immune system. It’s not major, not in the context of Lyme, but it is just one more insult to my body. Sometimes I get sick of always monitoring my health. Not in the “I take vitamins, exercise, eat right, and…
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solitude
Read more: solitudeMy social life has changed radically in the past seven years, and it’s hard to distinguish how much is due to Lyme, and how much is due to COVID. Now I’m trying to figure out why I like the quieter life so damn much. “There is a difference between solitude and loneliness.” ― Maggie Smith This…
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