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Muddling Through Life with Lyme Disease
The question is not how to get cured, but how to live.
Joseph Conrad
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I didn’t want to get up at 4:45 am this morning, but I did. The heat is defeating me once again. This is my third summer in Tucson and I get a Lyme relapse for weeks every time. I’m never quite well until it cools off, usually in late September or early October (and by…
I love the word “neurospicy.” It’s a lot less heavy than the term neurodivergent. An estimated 15-20% of Americans are considered neurodivergent, but what exactly is neurodivergent, anyway? A lot of different conditions fall under the umbrella of neurodivergent: autism spectrum, ADHD, dyscaculia, dyslexic, dyspraxia, Tourette syndrome, mental health, and, this one is interesting, “acquired…
Caretaking is a tricky business. One minute it’s simply doing the housework, making sure things run smoothly, cooking, and going to a few doctor appointments. This scenario doesn’t mean that the caretaker is on easy street, but it does mean that you can be in a state of denial about the future. Last month, I…
I’m trying to update my website and not having a huge amount of success.
Oh yeah, I don’t really have a house that is mine right now. This fact was made clear when I had some friends over last week. This is my Dad’s house. Of course it’s familiar, some of the things I have known virtually my entire life. The pictures and furnishing are intimately familiar to me,…
Two years ago I sold my big house, bought a smaller townhome with Katie, and left for Tucson to live with Dad. I did it with somewhat vague intentions, influenced by COVID, my own health, and my dad’s health. I spent zero time wondering if I was doing the “right thing” logically, and trusted my…
July 4th is tomorrow. I asked Dad if he wanted to do anything and he gave me the look that said not only “no,” but “HELL no.” I am okay with that. In fact, since Lyme, I don’t celebrate most holidays very much, certainly not like I used to. My theory is we celebrate most…
Anybody who has known me for any length of time knows that I am the world’s worst at dates and times. This is a neural defect I can’t blame on Lyme. It’s also not ADHD, nor is it carelessness. I could blame it on falling out of a tree at the age of seven. My…
I got my booster shot yesterday. I’d forgotten how much each vaccine stirs up my immune system. It’s not major, not in the context of Lyme, but it is just one more insult to my body. Sometimes I get sick of always monitoring my health. Not in the “I take vitamins, exercise, eat right, and…
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